Category Archives: Medical updates

Bad luck

By | May 28, 2015

Dear friends, In my last post I asked the question how much more bad luck Bram could have. He found out the hard way unfortunately over the last couple of days…. Since our last post Bram made really good progress, so much so that Bram finally got moved from High Dependancy Unit to a normal… Read More »

More progress, but also a hernia…

By | May 20, 2015

Dear friends, Bram is continuing his good progress. He is getting stronger every day, and that means he is better able to overcome his neurological issues. We regularly see him smile again, he is starting to make noise again. It is so nice to hear him chuckle again, and in a way it is even… Read More »

Finally some progress

By | May 10, 2015

Dear friends, Another week has past, another update. I am glad to report we have had a positive week. Last Sunday Bram knew his grandparents were coming over from The Netherlands. And he decided to impress them. Bram was taken off the intensive care and is now on the high dependency care unit. His breathing… Read More »

Back on intensive care, but improving

By | May 1, 2015

Dear friends, Bram is unfortunately back on the intensive care unit. Last sunday his CT scan showed increased levels of brain fluids. Some of these were tapped off a couple of hours later and on Monday afternoon Bram underwent his sixth round of surgery. The valve in his shunt got replaced with one which works… Read More »

Breathing by himself!

By | April 24, 2015

Dear friends Time for an update on Bram. He is currently on the Intensive Care Unit in Evelina Children’s Hospital. He got transferred there on sunday. On Monday surgeons performed an MLB investigation. They used a small camera to examine Bram’s throat and airway. They concluded they wanted to give Bram one more chance to… Read More »

12th April update

By | April 12, 2015

Dear friends, Another week has passed. Bram is still on the intensive care unit. This morning he had another round of surgery (his 4th).His external drain was replaced by an internal shunt which reroutes excess brain fluids into his abdomen where the body will get rid of it. So far it looks like this procedure… Read More »

Brothers meet again!

By | April 4, 2015

Bram and Max were reunited today for a couple of minutes. The fantastic staff at King’s College Hospital made an exception for Max to visit. They had not seen each other for 3 weeks. As you can see Bram is still on the paediatric intensive care unit. He is still connected to a ventilator although… Read More »

28th March update

By | March 28, 2015

Dear friends, Bram is still on the paediatric intensive care unit. He is slowly improving. He is still on a ventilator. Bram underwent surgery again last Wednesday. His shunt (internal drain) got blocked and had to be removed. He currently has an external drain to lower the pressure on his brain. This pressure is causing… Read More »