Monthly Archives: August 2016

Dear friends, Since my last update on Bram a lot has happened again (as always). Bram returned home 2 weeks ago from his stay in Great Ormond Street Hospital. When asleep he is now connected to a ventilator to aid his breathing. Initially this went well and Bram made good progress. We had a few… Read More »

Dear friends, Bram is still in hospital. During the last 2 weeks Bram has been ventilated. A sleep study showed that Bram’s CO2 levels were too high, he was not breathing enough and as a result his lungs are not properly inflating. To counter this Bram will be ventilated during nap time and at night… Read More »