Dear friends, Another roller coaster of a week. On Monday Bram had a final CT scan of his head to check if his brain fluids had returned to normal. They had, but the scan also showed that the cyst in his head was growing quickly. It now measured 4 by 5 cm. This growth needed… Read More »
Dear friends, Another week has passed since our last update, and again a week with ups and downs. On monday Bram had his 9th (and final) round of surgery before chemotherapy. This one lasted just over 5 hours and the surgeon fixed Bram’s scrotal hernia, inserted a hickman line (an IV line to be used… Read More »
Dear friends, Bram and us have had an extremely tough week. On Monday Bram was planned for surgery. This was cancelled at the last moment because his brain fluids readings were unsatisfactory. Also that day Bram started to experience breathing difficulties. This is most likely caused by scar tissue growing in his throat/windpipe in combination… Read More »
Dear friends, Bram has had a good week. After his emergency surgery last week he has made good progress. His external drain is working well and the plan is to have more surgery on monday to install an internal VP shunt(drain) again. This will be his 3rd, so hopefully third time lucky. The first couple… Read More »