Monthly Archives: June 2015

Bye Bye King’s College Hospital

By | June 30, 2015

Dear friends, Another roller coaster of a week. On Monday Bram had a final CT scan of his head to check if his brain fluids had returned to normal. They had, but the scan also showed that the cyst in his head was growing quickly. It now measured 4 by 5 cm. This growth needed… Read More »

Surgery and possible tumor regrowth

By | June 13, 2015

Dear friends, Bram and us have had an extremely tough week. On Monday Bram was planned for surgery. This was cancelled at the last moment because his brain fluids readings were unsatisfactory. Also that day Bram started to experience breathing difficulties. This is most likely caused by scar tissue growing in his throat/windpipe in combination… Read More »

A good week

By | June 6, 2015

Dear friends, Bram has had a good week. After his emergency surgery last week he has made good progress. His external drain is working well and the plan is to have more surgery on monday to install an internal VP shunt(drain) again. This will be his 3rd, so hopefully third time lucky. The first couple… Read More »