Dear friends, We are home again after a 3 day stay in London with Bram. After his cancellation of surgery on Tuesday Bram was scheduled for a MRI scan yesterday. Once again we started the fasting process for him in anticipation of a general anaesthetic. After a long wait the medical team found out an… Read More »
Unfortunately today’s operation did not go ahead as planned! But luckily singing hands were at gosh to cheer us up! Bram is a massive fan of singing hands makaton signing- it was a dream come true for us to see them (although we were missing Tracie) 👌🏻👏🏻🙌🏼👋🏻✊🏻✌🏻️👍🏻❤️ Xxx
Dear friends, Thank you for all the messages of support for Bram today. Unfortunately after a long delay his surgery was cancelled at the last moment today. Bram requires specialist care after surgery ansd that turned out to be unavailable today. His surgery will now be rescheduled for next month. Bram is still in London… Read More »
Getting ready for surgery #16! Feeding line replacement to a much smaller version. Another step to normality