Dear friends, We are glad 2015 is over for us. It has become a year we will never forget. Bram’s disease completly disrupted our normal life. Our lives will never be the same. Despite all the horror with Bram, we had some happy memories in 2015 as well. Taking Bram home after 225 nights, our… Read More »
Bram smiling! Keep fighting son!
Dear friends, Another week has past, another update. I am glad to report we have had a positive week. Last Sunday Bram knew his grandparents were coming over from The Netherlands. And he decided to impress them. Bram was taken off the intensive care and is now on the high dependency care unit. His breathing… Read More »
Happy Birthday to my wife! Bram gave Laura an amazing birthday present. Their first cuddle in 3 weeks!
Bram and Max were reunited today for a couple of minutes. The fantastic staff at King’s College Hospital made an exception for Max to visit. They had not seen each other for 3 weeks. As you can see Bram is still on the paediatric intensive care unit. He is still connected to a ventilator although… Read More »
Dear friends, Our son Bram celebrates his first birthday today. What is supposed to be a happy occasion has turned in to our worst nightmare. Yesterday Bram was diagnosed with a brain tumour. We don’t know all the details yet but are obviously very very worried. Bram is getting the best care he can get… Read More »