Dear friends, We have had a good start of the year. Bram is continuing to improve as you can see in the photos. Progress might seem slow but his physiotherapist and occupational therapist are extremely pleased with his progress. He has a therapy seat to train his sitting, a bath seat to make bath time… Read More »
Dear friends, We are glad 2015 is over for us. It has become a year we will never forget. Bram’s disease completly disrupted our normal life. Our lives will never be the same. Despite all the horror with Bram, we had some happy memories in 2015 as well. Taking Bram home after 225 nights, our… Read More »
Tears of joy!!! Bram’s MRI scan result is positive! Clean scan! We are over the moon. What a boy. Thank you all for your support!!!! Love, Jeroen, Laura, Max and Bram
Dear friends, Bram has been home for exactly one month. We are glad to say it is going well. It took Bram a couple of days to get used to his new surroundings but he is now completely used to it again. He is developing quickly. His hand eye coordination, his balance, his breathing, it… Read More »
Bram is home! Today we finally took our son back home. After 225 nights in hospital, we are reunited as a family. Laura and I are extremely excited to have him back, but it is nothing compared to the excitement his big brother Max showed today. Our boys are together again. We will have to… Read More »
Dear friends, Today is a day for celebrations. Bram has finished his cancer treatment. Earlier this morning Bram had his 30th and final round of radiotherapy. The radiotherapy team had a certificate and present waiting for him when he woke up from his anaesthetic. This afternoon Bram’s nurses threw him a party as well. Balloons,… Read More »
Dear friends, Week 5 of treatment has finished. And it is still going well. Bram is coping really well with the radiation and daily general anaesthetic. Only minor side effects. Bram has an active schedule. And we are able to take him out a couple of times a week for a walk outside. Bram is… Read More »
Dear friends,Bram has started his third week of radiotherapy. It is going well so far. Hardly any side effects. Just a bit of redness in his neck. And Bram is definitely a lot more tired. He is handling his daily general anaesthetics well. His weekday are very busy. Treatment in the morning, than recovery and… Read More »
Dear friends, Bram is doing well at the moment. He is recovering from his last surgeries. His tracheostomy is making his life a bit easier. Only a little bit of extra oxygen required (less than 1.0 litre per minute). He is happily playing in his little chair again and i am pleased to report that… Read More »
Dear friends, Bram is amazing. He just had 2 more rounds of surgery this week. And I am glad to say they both went well. On Wednesday Bram had a Lumbar Punction done. A CSF sample (brain fluids) was extracted from his spine and is currently checked in the lab. This is done to make… Read More »