Dear friends, Bram is continuing his good progress. He is getting stronger every day, and that means he is better able to overcome his neurological issues. We regularly see him smile again, he is starting to make noise again. It is so nice to hear him chuckle again, and in a way it is even… Read More »
Bram smiling! Keep fighting son!
Dear friends, Another week has past, another update. I am glad to report we have had a positive week. Last Sunday Bram knew his grandparents were coming over from The Netherlands. And he decided to impress them. Bram was taken off the intensive care and is now on the high dependency care unit. His breathing… Read More »
Dear friends, Bram is unfortunately back on the intensive care unit. Last sunday his CT scan showed increased levels of brain fluids. Some of these were tapped off a couple of hours later and on Monday afternoon Bram underwent his sixth round of surgery. The valve in his shunt got replaced with one which works… Read More »
After 37 days Bram has finally left intensive care. He is now on a high dependency unit. Another important step in his fight. Keep fighting Bram!!
We have had so many people ask if and how they can help us, that’s why we have set up a fundraiser for Bram: http://www.gofundme.com/bramsengers
Dear friends Time for an update on Bram. He is currently on the Intensive Care Unit in Evelina Children’s Hospital. He got transferred there on sunday. On Monday surgeons performed an MLB investigation. They used a small camera to examine Bram’s throat and airway. They concluded they wanted to give Bram one more chance to… Read More »
Dear friends, Another week has passed. Bram is still on the intensive care unit. This morning he had another round of surgery (his 4th).His external drain was replaced by an internal shunt which reroutes excess brain fluids into his abdomen where the body will get rid of it. So far it looks like this procedure… Read More »
Happy Birthday to my wife! Bram gave Laura an amazing birthday present. Their first cuddle in 3 weeks!
Bram and Max were reunited today for a couple of minutes. The fantastic staff at King’s College Hospital made an exception for Max to visit. They had not seen each other for 3 weeks. As you can see Bram is still on the paediatric intensive care unit. He is still connected to a ventilator although… Read More »