Dear friends, Bram is still in hospital. During the last 2 weeks Bram has been ventilated. A sleep study showed that Bram’s CO2 levels were too high, he was not breathing enough and as a result his lungs are not properly inflating. To counter this Bram will be ventilated during nap time and at night… Read More »
Dear friends, Today 4 years ago was one of our best days in life. We welcomed Max in this world and started our biggest adventure in life…. Parenthood! Our kids are everything for us and I am a proud father of Max and Bram. Today we celebrate Max’s 4th birthday together with his Scottish and… Read More »
Out with Bram for lunch. Bram’s immune system is fully recovered from his cancer treatment and as a result he had his immunisations today which he missed out on last year. And in a true hero style Bram slept right through it. 2 injections in his leg and Bram just sleeps. What a boy!
Dear friends, Today we took the boys to Sea life in Brighton. This was a present for the whole family from Max’s nursery. We had a fabulous day. Max was allowed to feed cabbage to the big turtles. We sat on a boat with a glass floor to see all the fish. And to top… Read More »
Funfair in Horley. Bram’s first ever funfair. Together with Max in the carrousel. Life is great.
Dear friends, Bram is back from hospital. Unfortunately not with the result we hoped for. Bram still has a tracheostomy. After a few days of step by step testing it is clear to us and the medical team Bram is not yet ready to live without his tracheostomy. Although disappointing for us and especially for… Read More »
Dear friends, Another update on Bram. Bram spent 3 nights in hospital earlier this week with a chest infection. He has mostly recovered and returned home yesterday. He is still making slow but steady progress in his recovery. Tomorrow Bram will be admitted to GOSH for a planned 5/6 day admission. His medical team are… Read More »
Dear friends, Exactly one year ago was the worst day of my life. After vomiting for nearly two weeks a CT scan showed Bram had a brain tumour, causing life threatening hydrocephalus. Bram was still lying in the CT scanner when a radiographer told me this. Shock, pain, fear were my initial reactions. But within… Read More »
Dear friends, A very positive update this time. After 14 days in hospital Bram returned home yesterday. His line is gone and the antibiotics have done their work. Last Thursday Bram got transferred again to Great Ormond Street Hospital. That afternoon he had investigative surgery on his airway. The surgeons were happy with what they… Read More »