Category Archives: Medical updates
Looking back
Dear friends, With only a few hours left this year it is time to look back. Bram is continuing his good progress. He is still practicing every day to learn to stand. With the aid of his standing frame or something to hold on to he is now able to stand up by himself as… Read More »
More surgery (number 19…)
Dear friends, Time for a well overdue update on our hero. After his shunt problems in October Bram has had a good few months without major problems. In november he underwent another sleep study and the result were very good. So much so that he does not need his ventilator anymore for daytime sleeps and… Read More »
Another blocked shunt
Dear friends, On Sunday evening Bram started to vomit again uncontrollably and yesterday morning Bram continued to be sick and was very sleepy and lethargic. Laura did not like what she saw and took him straight to East Surrey Hospital. While he was there he weakened further and showed disturbing neurological behaviour. Bram was stabilised… Read More »
Quick update
Quick update: Bram’s surgery went well, his vp shunt (drain) is fixed and Bram is awake again. Thank you all for the support today. Go Bram!!
Tumour free and blocked vp shunt
Dear friends, Bram’s rollercoaster journey took a few more steps over the last couple of days. Lets’s start with the amazing news. Bram had his MRIscan under full general anaesthetic done on Tuesday and he is still tumour free!!!!! We are over the moon! It will never get easy having to wait for these results.… Read More »
No more oxygen
Dear friends, Bram continues his amazing progress. He is now learning to stand up and is able to stand up and hold on to the couch/table and escape from his ballpool. Two weeks ago Bram spend one night in hospital for a planned sleep study. This study focuses on Bram’s breathing and the results were… Read More »