Dear friends, Last Sunday we were finally able to travel back to the UK after Bram’s unplanned hospital admission in the Netherlands. Our trip home went well. We have had a busy week getting ready for Christmas. Max went to see Santa, went to see a pantomime and had his Christmas party at nursery. To… Read More »
Dear friends, Our rollercoaster ride continues. We have had two amazing weeks of holidays in The Netherlands. We spent a week at Center Parcs. We went swimming every day, we took the boys horse riding and to the theatre to see “Het Zandkasteel”. Also we celebrated Sinterklaas. Both boys got spoiled with lots of gifts.… Read More »
Dear friends, Bram spend another night in Great Ormond Street Hospital last week. This was a planned admission to have a sleep study done. For the first time in more than a year Bram slept the whole night without needing extra oxygen. It shows to the medical team that Bram’s respiratory system (his breathing) is… Read More »
Dear friends, Yesterday, after 2 cancelled appointments Bram finally had his MRI scan. As always done under full general anaesthetic. Bram’s oncologist was present as well and he was able to confirm to us quickly that Bram had delivered another CLEAN SCAN! We can now celebrate that Bram has been cancer free for more than… Read More »
Dear friends, We are home again after a 3 day stay in London with Bram. After his cancellation of surgery on Tuesday Bram was scheduled for a MRI scan yesterday. Once again we started the fasting process for him in anticipation of a general anaesthetic. After a long wait the medical team found out an… Read More »
Unfortunately today’s operation did not go ahead as planned! But luckily singing hands were at gosh to cheer us up! Bram is a massive fan of singing hands makaton signing- it was a dream come true for us to see them (although we were missing Tracie) 👌🏻👏🏻🙌🏼👋🏻✊🏻✌🏻️👍🏻❤️ Xxx
Dear friends, Thank you for all the messages of support for Bram today. Unfortunately after a long delay his surgery was cancelled at the last moment today. Bram requires specialist care after surgery ansd that turned out to be unavailable today. His surgery will now be rescheduled for next month. Bram is still in London… Read More »
Getting ready for surgery #16! Feeding line replacement to a much smaller version. Another step to normality
Dear friends, Since my last update on Bram a lot has happened again (as always). Bram returned home 2 weeks ago from his stay in Great Ormond Street Hospital. When asleep he is now connected to a ventilator to aid his breathing. Initially this went well and Bram made good progress. We had a few… Read More »