Category Archives: Medical updates


By | May 7, 2019

Welcome in this world! It is our great pleasure to announce the birth of Anoek Laura Sengers. Our daughter and sister was born this morning at 11:50 weighing in at a healthy 9 pounds! After a 2 day wait in hospital to get induced it than only took Laura 2 hours and 10 minutes between… Read More »

lots of appointments

By | February 28, 2019

Dear friends, Bram has had a busy couple of weeks with 5 visits to Great Ormond Street Hospital. He is settling in at school and currently attends 3 days a week. We hope that he will be able to attend 5 days a week from June onwards. So far school has been good for him.… Read More »

Surgery #21 (and #22 planned)

By | January 22, 2019

Dear friends, Our hero had surgery again yesterday procedure number 21! To reduce drooling Bram had botox administered to his saliva glands. Surgery went well and after a long day Bram and I returned home at 2300. In the next couple of weeks we can hopefully see a reduction in his drooling. Fingers crossed. Next… Read More »

Our hero goes to school

By | November 13, 2018

Dear friends, Today is a special day for us, a very special day. After a few settling in sessions over the last couple of weeks, Bram is having his first day at school today. Our remarkable little boy, but great fighter has reached a major milestone. We often thought this day would never happen. Bram… Read More »

3 years ago…

By | July 29, 2018

Dear friends, 3 years ago Bram had his second brain tumour removed. It was a make or break surgery that day. In the days leading up to this Bram had deteriorated and stopped breathing a couple of times a day. We knew that if the surgeons were unable to remove the tumour completely we most… Read More »

Another update

By | June 26, 2018

Dear friends, It has been a while since I have updated you on Bram’s progress. And i am delighted to say he is doing well. In the last couple of weeks we have had appointments with respiratory, endocrinology and opthalmology, and all were happy with Bram’s progress. Bram is working hard on learning to stand.… Read More »

Happy Birthday Bram

By | March 15, 2018

Dear friends, “However difficult life may seem, there is always something you can do and succeed at”. A quote attributed to Stephen Hawking, who passed away today. But i think it also fits Bram. Three years ago today Bram was diagnosed with his brain tumour. It is the day his and our lives changed forever.… Read More »