Dear friends, Last Sunday we were finally able to travel back to the UK after Bram’s unplanned hospital admission in the Netherlands. Our trip home went well. We have had a busy week getting ready for Christmas. Max went to … Continue reading Back in the U.K.
Dear friends, Our rollercoaster ride continues. We have had two amazing weeks of holidays in The Netherlands. We spent a week at Center Parcs. We went swimming every day, we took the boys horse riding and to the theatre to … Continue reading Sinterklaas, dentist, theatre, horses and intensive care
Dear friends, Bram spend another night in Great Ormond Street Hospital last week. This was a planned admission to have a sleep study done. For the first time in more than a year Bram slept the whole night without needing … Continue reading Less oxygen
Dear friends, Yesterday, after 2 cancelled appointments Bram finally had his MRI scan. As always done under full general anaesthetic. Bram’s oncologist was present as well and he was able to confirm to us quickly that Bram had delivered another … Continue reading One year cancer free!
Dear friends, We are home again after a 3 day stay in London with Bram. After his cancellation of surgery on Tuesday Bram was scheduled for a MRI scan yesterday. Once again we started the fasting process for him in … Continue reading MRI Cancelled
Unfortunately today’s operation did not go ahead as planned! But luckily singing hands were at gosh to cheer us up! Bram is a massive fan of singing hands makaton signing- it was a dream come true for us to see … Continue reading Singing Hands
Dear friends, Thank you for all the messages of support for Bram today. Unfortunately after a long delay his surgery was cancelled at the last moment today. Bram requires specialist care after surgery ansd that turned out to be unavailable … Continue reading Surgery cancelled
Getting ready for surgery #16! Feeding line replacement to a much smaller version. Another step to normality Continue reading Getting ready for surgery #16!
Dear friends, Since my last update on Bram a lot has happened again (as always). Bram returned home 2 weeks ago from his stay in Great Ormond Street Hospital. When asleep he is now connected to a ventilator to aid … Continue reading Home, back to hospital and home again