Dear friends, Yesterday, after 2 cancelled appointments Bram finally had his MRI scan. As always done under full general anaesthetic. Bram’s oncologist was present as well and he was able to confirm to us quickly that Bram had delivered another … Continue reading One year cancer free!
Dear friends, We are home again after a 3 day stay in London with Bram. After his cancellation of surgery on Tuesday Bram was scheduled for a MRI scan yesterday. Once again we started the fasting process for him in … Continue reading MRI Cancelled
Unfortunately today’s operation did not go ahead as planned! But luckily singing hands were at gosh to cheer us up! Bram is a massive fan of singing hands makaton signing- it was a dream come true for us to see … Continue reading Singing Hands
Dear friends, Thank you for all the messages of support for Bram today. Unfortunately after a long delay his surgery was cancelled at the last moment today. Bram requires specialist care after surgery ansd that turned out to be unavailable … Continue reading Surgery cancelled
Getting ready for surgery #16! Feeding line replacement to a much smaller version. Another step to normality Continue reading Getting ready for surgery #16!
Dear friends, Since my last update on Bram a lot has happened again (as always). Bram returned home 2 weeks ago from his stay in Great Ormond Street Hospital. When asleep he is now connected to a ventilator to aid … Continue reading Home, back to hospital and home again
Dear friends, Bram is still in hospital. During the last 2 weeks Bram has been ventilated. A sleep study showed that Bram’s CO2 levels were too high, he was not breathing enough and as a result his lungs are not … Continue reading Still in hospital
Dear friends, Today 4 years ago was one of our best days in life. We welcomed Max in this world and started our biggest adventure in life…. Parenthood! Our kids are everything for us and I am a proud father … Continue reading Max’s birthday, Bram in hospital again
Out with Bram for lunch. Bram’s immune system is fully recovered from his cancer treatment and as a result he had his immunisations today which he missed out on last year. And in a true hero style Bram slept right … Continue reading Immunissations