Quick update: Bram’s surgery went well, his vp shunt (drain) is fixed and Bram is awake again. Thank you all for the support today. Go Bram!! Continue reading Quick update
Dear friends, Bram’s rollercoaster journey took a few more steps over the last couple of days. Lets’s start with the amazing news. Bram had his MRIscan under full general anaesthetic done on Tuesday and he is still tumour free!!!!! We … Continue reading Tumour free and blocked vp shunt
Dear friends, Bram continues his amazing progress. He is now learning to stand up and is able to stand up and hold on to the couch/table and escape from his ballpool. Two weeks ago Bram spend one night in hospital … Continue reading No more oxygen
Bram has never walked in his life……until today that is. With his new walking frame, and a bit of a push from Max he took his first steps. This boy has no limits. Go Bram! Continue reading A small step for a child….a giant leap for Bram!
What a day! Bram had his MRI scan today…..and it is good news. Still in remission. What a hero! Max had a gymnastics day at nursery and received a nice certificate. Well done Max. We are two very happy and … Continue reading Happy parents
And than he stands by himself. So proud!! Continue reading Wow
Dear friends, Last Sunday we were finally able to travel back to the UK after Bram’s unplanned hospital admission in the Netherlands. Our trip home went well. We have had a busy week getting ready for Christmas. Max went to … Continue reading Back in the U.K.
Dear friends, Our rollercoaster ride continues. We have had two amazing weeks of holidays in The Netherlands. We spent a week at Center Parcs. We went swimming every day, we took the boys horse riding and to the theatre to … Continue reading Sinterklaas, dentist, theatre, horses and intensive care
Dear friends, Bram spend another night in Great Ormond Street Hospital last week. This was a planned admission to have a sleep study done. For the first time in more than a year Bram slept the whole night without needing … Continue reading Less oxygen