Welcome in this world! It is our great pleasure to announce the birth of Anoek Laura Sengers. Our daughter and sister was born this morning at 11:50 weighing in at a healthy 9 pounds! After a 2 day wait in … Continue reading Anoek

Dear friends, Bram has had a busy couple of weeks with 5 visits to Great Ormond Street Hospital. He is settling in at school and currently attends 3 days a week. We hope that he will be able to attend … Continue reading lots of appointments

Dear friends, Our hero had surgery again yesterday procedure number 21! To reduce drooling Bram had botox administered to his saliva glands. Surgery went well and after a long day Bram and I returned home at 2300. In the next … Continue reading Surgery #21 (and #22 planned)

Dear friends, Today is a special day for us, a very special day. After a few settling in sessions over the last couple of weeks, Bram is having his first day at school today. Our remarkable little boy, but great … Continue reading Our hero goes to school

Pssst… Max and Bram have a secret…. They are going to be a big brother (again)!! The 5th member of the Sengers clan is due in early May 2019 and we are all very excited. Continue reading time to share a secret

We are extremely relieved to let you know that Brams latest mri scan has came back clean! Our very brave soldier has now been in remission for 3 years! ❤️ Continue reading Another clean scan!

Dear friends, 3 years ago Bram had his second brain tumour removed. It was a make or break surgery that day. In the days leading up to this Bram had deteriorated and stopped breathing a couple of times a day. … Continue reading 3 years ago…

Dear friends, It has been a while since I have updated you on Bram’s progress. And i am delighted to say he is doing well. In the last couple of weeks we have had appointments with respiratory, endocrinology and opthalmology, … Continue reading Another update

Dear friends, “However difficult life may seem, there is always something you can do and succeed at”. A quote attributed to Stephen Hawking, who passed away today. But i think it also fits Bram. Three years ago today Bram was … Continue reading Happy Birthday Bram

The worst day of the year is over…. scan day! Clean scan as a result! We are over the moon! Go BRAM! Continue reading Scan day!