Time for a well overdue update on our hero. After his shunt problems in October Bram has had a good few months without major problems. In november he underwent another sleep study and the result were very good. So much so that he does not need his ventilator anymore for daytime sleeps and is on a reduced rate at night. Early in 2018 Bram will have another sleep study to see if he can handle a ventilator with even less support. He is definitely heading in the right direction.
Yesterday Bram had another round of surgery. Number 19!!! He was put to sleep and than administered botox in his saliva glands (speekselklieren for my Dutch readers). The hope is that this will reduce or completely stop his drooling. Botox will take a few days before we start to see the results (if any). Fingers crossed. Laura Sengers has been trying to convince the doctors to try botox on her first but to no avail. 😉
Bram has recovered well but is still a bit uncomfortable bit nothing what a small dose of paracetamol can’t fix. Bram returned home yesterday and he and max are getting ready for Christmas.
We would like to wish you all a merry x-mas, hope you have a great time with your loves ones. We are excited we can celebrate x-mas together in good health.
Thank you for your support!
Jeroen, Laura, Max and Bram